Thursday, July 24, 2008

Chemo 1 recap

I was too bloody miserable post chemo #1 to really keep a good eye cast on my symptoms, even though it had been my intention to log each one. But as I mentioned before, post-chemo #1 was complicated by disastrous side-effects from my painkillers. It's very, very hard to say where chemo kickback ended and painkiller evilness began.

But here's a list of stuff that I suffered through and realizations that I had during the three week cycle with chemo 1.
  • Constipation/Diarrhea Cycle of Horror (with an occasional visit from Puke Evil): This was my biggest problem and the one most hard to determine whether it was primarily chemo or primarily painkillers. This began on around Day 3 where I was backed up and had been since before Chemo. Then I began to have intestinal cramps like you would have if you were going to have diarrhea, but there was no exit room for said poo. (The levees of my constipation held back the flood of the liquid crap). Despite taking the maximum dose of Senna daily and eventual Milk of Mag, I finally called the doctor in misery after hours on Saturday and was told to try the Magnesium Citrate. Unfortunately we only had the cherry flavor. After two doses of that, all hell broke lose in my body and I was pooing and puking, often simultaneously (thank goodness my tub is within barfing distance of my toilet. I'm sorry for the horrible imagery) for the better part of 14 hours. The situation finally resolved mostly somewhere in the neighborhood of the first Sunday.
  • Regular bouts of diarrhea plagued me for most of Week 1 and kept me largely housebound because the bouts would come out of nowhere and be unmanageable. One afternoon midWeek1 I went to a coffee shop and had to come home in total panic because I just couldn't stop pooing.
  • Hair loss: Head hair started going on Saturday, so we shaved it immediately. I may have jumped the gun a bit, as most of it is stubbly growing back. But, as untraumatized as I was about being bald, LOSING the hair made me sick to my stomach, so I would rather jump the gun than be constantly sick. Then of course, there was the Week 2 losing of my lady hair. I shaved the rest of that off pronto.
  • Mouth sores: bothered me Week 1 and Week 3. A friend of mine whose husband is an orthodontist prescribed "Magic Mouthwash" that is a compound of pain killers and anti fungal stuff and all kinds of mouth health goodness. It helps. Big time.
  • Weight Loss and Lack of Appetite: Week 1, especially Days 2-5, food did not sound good to me at all. It wasn't til Day 4 (I consider Chemo Day, day 1) that I finally said F*** it, and just started eating any ol' thing that appealed to me (as opposed to the veggies, protein, etc that I should have been eating). And frankly, I discovered that when the eating cards are down and you just can't stomach the good-for-you solutions, those foods that were comfort foods to you before chemo will often be comfort foods to you after chemo. I got most of my calories during Week 2 from spaghetti with Ragu and chicken ramen noodles with frozen broccoli. I just couldn't stomach yogurts and salads and healthy options. I went from 118 to 115 to 117 during the three weeks.
  • Wacko Sleep Schedules: I've been staying up til 3 or so every night. Some of it is that I no longer associate sleep with comfort because of the difficulties associated with having my implant spacers. Some is the drugs.
  • Acne: First couple of days, I had some nasty acne on my chin. I've always had bad skin, but this seemed quite obviously tied to the chemo and disappeared after Week 1.
  • Exhaustion and general blahs: Emotions up and down. Lethargy which is no doubt tied to depression. Walking to the local movie theater and back kind of winds me.

That's all I can think of now. Hopefully, as I said, I will have a much better sense of things after this next cycle.

Good news everyone!


This is me not looking as happy as I should after finding out that my treatments have been REDUCED from 8 to 6. That means, as of today, I am 1/3 of the way through. (I'm actually about 3/4 to being 1/3 of the way through). Very exciting.

Friday, July 18, 2008

Booby Prize: Whoa!

Snap.

That's f-ed up.

I shaved my head a few weeks ago to beat the whole "falling out in clumps" thing. Fine. Good. I'm getting used to that.

But I just went to the loo and discovered that my hair "down there" is... well, falling out in clumps.

Whoa. Snap. That's f-ed up.

Seriously.

In the News (Local): First Lady launches Breast Cancer Initiative

Good job!

FRANKFORT, Ky. — Women working on the backside of Kentucky’s horse tracks will get breast cancer screenings under an initiative launched today by First Lady Jane Beshear. The “Horses and Hope” initiative also will raise money for research and outreach programs and sponsor breast cancer race days at Kentucky’s tracks to promote awareness.

Thursday, July 17, 2008

Cold Turkey

I realize now that I’ve neglected to address one of the more difficult aspects of my “cancer journey” (as Gilda’s Club calls it) in this blog. And that’s because, for some reason, it carries a huge helping of shame along with it.

For lack of a better term, I’ll call it “lifestyle overhaul.”

There’s this thing on Facebook called “superlatives.” I’m a Facebook novice by choice. It’s exactly the kind of thing that I could get carried away with, and because of that, I have opted to just dabble to a tiny degree. But today, I accessed the Superlatives function—a program that lets you “nominate” your friends for all sorts of stupid, high school yearbook superlatives-- and realized that Jas had named me “most likely to party like a rockstar.”

It’s a backhanded compliment, to be sure.

Lifestyle overhaul.

Before cancer, I deserved that epigraph. I did, admittedly, drink to a degree that did, at times, cause concern both to me and to those that I love. I have no doubt that my lifestyle choices, pre-cancer, altered relationships perhaps even to destructive degrees. Hindsight—if I were to dwell on it long enough, which I won’t because I don’t need any more grief these days—might even tell me that I might still be romantically involved with Jason if my lifestyle choices had been different along the way.

The connection between breast cancer and drinking has been the subject of research. But the connection between smoking and cancer is fairly incontrovertible. And I smoked like a California wildfire from age 18 on. That’s more than half my life.

As the daughter of a victim of cancer—a man who died at age 27 from the disease—one would think I would “know better.” But I was also the daughter of a chain smoking mother, a woman who to this day balks at the idea of spending more than “scarf down your food time” at a restaurant where smoking isn’t allowed.

Quitting smoking has been a battle, but it is one that I am winning.

I wish I could say that I’ve won. I quit cold turkey—whammo! Done—after my surgery. At Bonnaroo, I gave in to my devils and allowed myself a single pack (as comparison, let it be known that I went through more than five packs at Bonnaroo the year before). And since then—more than a month now—I’ve been so good. But it doesn’t mean that I have “beat it.”

I went out for a beer (two to be fair) with a friend of mine tonight. It was gorgeous and hot and we sat outside and everywhere everyone was smoking, and I wanted to smoke SO BADLY. A few weeks ago, Jas and I went to a hookah bar for the first time, and my head suddenly became electric—hookah!?! Could I indulge my neediness that way? Is smoking a hookah as bad for you as smoking a cigarette?? I did my research only to find that the jury is still mostly out on that one.

It gets so bad sometimes that I think I would smoke a rolled-up paper towel just to go through the goddamned motions of holding something burning in my hand and drawing the smoke into my lungs.

There’s a woman in my neighborhood who, six months ago, went through the exact same breast cancer ordeal that I am going through now. And, like me, she was/is a chain smoker. Her doctors would not perform the reconstructive surgery on her until she quit smoking… which she did not, and could not. She did, just a few weeks ago, finally get her doctors to relent, but she’s still smoking. I’m not sure why my doctors allowed me to do the whole shebang. I told them I’d quit, but why did they take my word?

J’s dad had colon cancer—it was, and still is, a huge deal, for a while we didn’t think he’d make it—and his response was basically, “Smoking probably did this to me. The worst happened. I might as well not bother stopping now.” Likewise, his mom—younger than my Ma—had a heart attack a few years ago, and she stopped for a little while but is smoking again.

So, J has been really cynical about me and my “lifestyle overhaul.” And perhaps that’s how I’ve been able to go Cold Turkey; I have something to prove to him: that cancer smartened me up, that I’ve learned my lesson the very hardest fucking way possible.

Do I blame my cancer on smoking? It would have been easier to say no if my genetics tests had proven that I was predisposed to cancer. But they didn’t. My great grandmother died a smoker in her 90’s. My 58 year old mom started smoking in her teens and has never suffered consequences thus far. It’s so common to read stories of men and women living well into the triple digits smoking and drinking to rock star degrees.

I did, however, meet a woman in her sixties with lung cancer the other day at a “Look Good; Feel Better” event sponsored by the American Cancer Society. She’d just finished up a round of radiation because the cancer had spread to her brain. And when you meet someone with lung cancer, it’s hard NOT to understand what a boneheaded move smoking really is.

Louisville—Kentucky in general, actually—has one of the highest smoking rates in the country. Last summer, around this time, the city passed a smoking ban that caused a huge amount of controversy. Despite my status as a human chimney, I never really begrudged the move. I always knew, in my heart of hearts, that it was the right-ish thing to do (then, as I do now—believe it or not—I’ve always thought the BEST move was to force bars and restaurants to declare themselves “smoking” or “non-smoking” and leave it up to the fickle hand of the free market to do its fingery duty). Even in the dead of winter, I didn’t sulk when I had to take my dirty friend outside.

But one of the things that bugs me most is the number of kids who smoke in this city. I am only guessing here, but I am pretty sure that Louisville has a greater number of teen smokers than New Orleans did. I remember this time last year walking down to Starbucks and encountering a couple of students that I had taught, both of whom were smoking. They were well within their legal rights—clearly 18—and weirdly unembarrassed and willing to hold a conversation with me, cigarettes in hand.

I’ve always hidden the fact that I was a smoker from my students, and since moving to Louisville, I hid it from my colleagues as well, for the most part. It was April or so of THIS year that I ever smoked in front of a colleague (the same one I had beers with tonight), and it wasn’t until a Derby Party this year—the weekend before my biopsy—that I smoked around more than one colleague (two to be exact). After I was diagnosed, I mentioned my smoking to a colleague that I would say that I am VERY close to and she said, “I had NO idea you were a smoker; you never smell of smoke.”

I don’t remember exactly when I started smoking WITH my mother. It was definitely when I was still in college. I even smoked around my maternal grandparents in my early 20’s. But, in hindsight, what SHOULD have been my guide was the fact that I NEVER, EVER felt comfortable enough to smoke around my paternal grandmother—the mother of my father who died of cancer.

I was always too ashamed of the habit to smoke around her. This despite the fact that, ever since I was a child, the ONLY person who has ever been allowed to smoke in my grandmother’s house was my mom. Ma had an ashtray that lived in my grandmother’s dishtowel drawer. When we came to visit, the ashtray came out, and, even at the dinner table, Ma was allowed to light up. I’m not saying that my grandmother approved—but she accepted.

To my aunts and uncles who smoked (and still do), my mom’s status as “accepted smoker” made her a legend in the family. It’s been so long since I’ve been to my grandmother’s house WITH my mother, that I don’t know if this status still holds—I doubt that it does. But most of my aunts and uncles still hide their smoking from my grandmother—and during extended visits, they sneak out to various hiding places to indulge—places that I’ve learned and shared in my adulthood.

Retrospect on my lifestyle choices leaves me wondering and sad. The brother of my father who always seemed to be most touched by Dad’s death smokes and always has. Ma, who lost her husband to cancer, whose dad suffered terribly from emphysema and smoking-related heart ailments, and now has a daughter that is trying to kick cancer’s (and smoking’s) ass, still smokes.

Maybe Ma’ll be like my great grandmother; I suppose that was the gamble that I signed on to. I do know that my smoking was one of the many “make or break” issues in my romantic relationship with Jason, and I always postponed the “make” part of that, assuring him that “someday” would come soon.

Again, wondering and sad. And, frankly, absurdly, addictedly, wishing that there was a comparable bad habit that I could embrace without suffering the same shame and running the same risk.

(Many of my friends would answer: POT! Again, absurd to think that somehow me being a pot smoker might have been more acceptable to people around me than being a cigarette smoker.)

Wednesday, July 16, 2008

In The News: WTF?

Ladies, give your breasts a rest, research says
Permission to skip self-exams a relief for some, perplexing for others


Seriously?? Perplexing-- HELL YEAH.

Just a little FYI, this 34 year old woman who was as lumpy as they come and who did discover her malignant tumor by her own little self would strongly recommend that you completely ignore this as total and complete poppycock.

According to a review by the Cochrane Collaboration, an international
organization that evaluates medical research, there’s no evidence that
self-exams actually reduce breast cancer deaths. In fact, the often-recommended
monthly chore may even do more harm than good, according to the group’s analysis
of a pair of studies of nearly 400,000 Chinese and Russian women...

...The issue is complicated, acknowledges Dr. David B. Thomas, breast cancer epidemiologist at Seattle’s Fred Hutchinson Cancer Research Center and professor of epidemiology at the University of Washington.

...“The price you pay for doing more thorough breast exams is you’re going to find more benign lesions and that will result in unnecessary surgical procedures,” he says.

...“Women in their 20s and 30s rarely get breast cancer,” he says. “But they do have a lot more benign lumps and bumps. It’s not worth emphasizing breast self-exams for women at this age.”

Tuesday, July 15, 2008

Hanging Bald

Jason says that maybe bald is the new me. After going wig shopping today, I'm pretty convinced that bald is the new me at least for the next eight months or so.

Wig shopping wasn't traumatic so much as just uncomfortable. I did buy a very sassy, very "Young Bonnie Raitt" stawberry blonde number, but I can't imagine where I will wear it. None of the wigs looked like "me." In varying degrees they all struck a very Barbie note; whose hair, in real life, is that shiny, that nuanced of shade, that healthy and swingy?

That's me with the penguin over there. I'm lucky to have been blessed (as someone just said in email) "good cheekbones," big eyes, and a pleasingly shaped head. For the most part, I've been rocking the bald look with a pretty good attitude.

What's unnerved me to a certain extent is the amount of attention that I attract.

Here's something interesting (pardon me for working through this post as I write, I'm suddenly not sure where to go with this): When I started writing this entry, I was working on the assumption that I attracted so much attention because I am bald AND I have/had cancer. I DO, I admit, definitely cut a very "Cancer Girl" figure-- I'm short, my booblessness makes me look a little scrawny, and when my make up wears down I can be pretty pale. But the question remains: if I saw a bald woman walking down the street, would I assume she had cancer?

Honestly, only one person whose attention I've attracted has directly referenced cancer. On Sunday, I went to the movie theater and a good-looking black guy told me to "Hang tough, girl." Twice. Once on the way in. Once on the way out. The first time rattled me, brought tears to my eyes. The second time it made me laugh.

Actually, that's not true. Last weekend at IKEA, an older woman in a wheelchair caught my attention by saying "Excuse me, lady" and then she yanked off her baseball hat to reveal a kindred bald pate. I didn't know what to say. It does seem apt to acknowledge my sisterhood with these women, but what's the appropriate greeting? We should have some sort of Cancer Code. Like witches (or Wiccans if you prefer) say "Blessed be" as a greeting. Maybe I should start a movement. Maybe our code should be "Hang Tough, girl." (I find the whole "Hang Tough" thing immoderately amusing because of the current revival of the New Kids on the Block. Did anyone really miss them?)

Anyway, every other person who has said "You look great" to me, or some variation thereof, may have meant just that. My local Starbucks barrista went so far as to ask me what inspired the "fashion statement." Maybe with more practice, I will come up with a more couth answer than "Uhhhh... cancer? Chemo? Uh, I had to shave it because I had uhhh... cancer." Dude took it totally in stride. "Cancer. Fashion. Fashion. Cancer. Whatever. You look great."

So maybe it's only in my head that I am attracting attention because I am Cancer Girl and that makes me uncomfortable. I'm weirded out in my noggin by the sense that there's pity being whiffed in my general direction. But maybe I should start thinking of it as "I'm attracting attention because I look great, and that's fantastic."

Honestly, once upon a time, on the day here and there when I attracted attention because I was cute and I had a HUGE RACK, I rather appreciated the compliment inherent in the attention. (I know I part ways with most feminists on this, but I guess it never happened enough or in a crude enough way to ever really strike me as "objectification.")

And some of my favorite people have been bald. Sinead O'Connor is a fracking nutcase, but she's always been gorgeous. Until today, I'd somehow forgot that the greatest female action hero in history-- Ripley from Aliens-- was bald in #3. Natalie Portman was bald in V for Vendetta (which I've yet to say). She's not only beautiful, but smart too. She even said at the time that she wished she could keep her bald head. There's a great gallery of "Eight Women Who Look Better Bald Than Britney [Spears]" here.

Truth is, though, I would put Big Money on a bet that the moment I step off the plane in New England to visit my mother, if I am not sporting a wig, she'll offer to take me to a wig store. When I called my mom and told her I shaved my head, she said, "Why on earth would you do that?" Again, not very good with the snappy comebacks: "Uh... started to fall out. Couldn't handle it. Freaked out." Her response: "I bet you look like a dyke."

And that's where so many people are when it comes to hair. If you're bald, you're either Cancer Girl or a lesbian (and not the glamorous kind--the gender bending, threatening kind) or wanting to draw some sort of attention to yourself for a personal or politcal reason. And although my mother would keel over if I were a lesbian (she's not a bigot-- I don't mean to make her sound bad; she's just of a certain age), I think the latter would be the worst for my mother. We're New Englanders. You just don't make a S-P-E-C-T-A-C-L-E out of yourself if you can do anything to help it.

And I can do something to help not make a spectacle out of myself. I could wear a wig. But I don't think I will. Because I look great.

Friday, July 4, 2008

Chemo Session #1, Day of Chemo

Well, I'm halfway into Day 2 of Chemo 1, but I'm reluctant to report as my condition seems to change from hour to hour. But here's what I can tell you about yesterday.

Yesterday's appointment-- the day before a holiday-- took around 6 hours and we were the last ones out of there. Jas stayed with me practically the whole time, especially after hearing the long list of possible side effects that included things like "the feeling that you might poo in your pants." I'm not kidding.

Luckily none of those came to pass. It was, for the most part, boring and uneventful. And that's a seriously good thing. The nurses were lovely and paid lots of attention to me, despite the fact that my lengthy appointment encroached on their long weekend.

The hook up to the port was no fun, but not worth the $35 I found out the pain prevention creme costs. I can cowboy up for the pricks.

Mostly it was just a lot of super groggy time wasting. If I hadn't been so afraid of pooping my pants, I would have slept through most of it.

And that, honestly, remained a problem for most of the day-- the fear of falling asleep only to wake to classic chemo symptoms had me so afraid that I didn't go to bed til 3am. Most of the evening, I ate steadily (just in case I couldn't today) and was super groggy and stupid feeling. A little stumbly and my joints ached.

That's about it. Not fun, but not horrible. I'll let you know how it goes day by day.

Friday, June 27, 2008

Email #8 Chemo

I just uploaded my Bonnaroo pictures, and I thought you might enjoy a photo of the lengths we had to go to to protect my mastectomy incisions from the seatbelt. Truth be told, the car travel to and from Bonnaroo was more painful than just about anything else I did at Bonnaroo. That's three pillows (and the ubiquitous Starbucks cup).Anyway, just a quick update today...

Fun Fact of the Day: Did you know that the US Conference of Mayors recently recognized Louisville as America's "most livable" large city? Totally deserved. Except in mid-February when it's &%$&^ cold and %&&$#!! grey and &%$%!! gloomy...

Anyway, chemo starts on July 3, and I'm getting my chemo port placed on July 1. (yes, Megan and Jana, I finally decided that I should get a port... I'm still VERY, VERY uncool with the idea of one more foreign object in my body, but I'm trying to tap into my inner science fiction fan to try to reimagine it as a "neat thing.")

I've been told that chemo means one crappy week followed by two good weeks, so I am going to try to do some traveling during those two "good weeks" this summer. I'd like to hit NOLA and New England, at least, so those of you in those locales, please drop me a note and let me know any BAD dates to visit in July and August.

And yesterday had a full FOOT of hair cut off... I should have done it a long damned time ago. It's pretty cute!

love to you all,
xoMRC

Thursday, June 26, 2008

Crawling out from under the Rock

I don't mean the former wrestler. That might have meant that I had had a good couple of weeks. And I'm not sure I'm really "crawling" out so much as peeking.

Jason just came into the kitchen and stuffed a Red Sox cap on my head and gingerly tucked all the hair that he could under the cap. He's trying to show me that I will be "cute" bald. That's because I sent him a link to Bald is Beautiful, the website of an ovarian cancer survivor (and fellow Columbia grad-- though she went to Barnard) who decided that she was so gorgeous bald that she became a bald model and a cancer activist. (I'm oversimplifying-- check out the blog)

It's been a dreadful couple of weeks. Pretty much since Bonnaroo I've been very blah, mostly because I am in constant unrelenting pain. It's like someone is nailing nails into my non-existant breasts all of the time. It was so bad this week that my plastic surgeon refused to "inflate" me. He says he hasn't seen this much pain this far along in a long time. And sometimes I wonder if he thinks I'm full of crap. But I'm on a steady diet of Advil, Darvocet, and Valium at all times. Not too good for the noggin. Perhaps this is a preview of what chemo brain will feel like.

The big news is that chemo starts a week from today-- July 3. And Tuesday, July 1, I have to have surgery to put a port in. For some reason the whole port thing has me absolutely berzerk. I do NOT want to do this, but everyone swears that chemo will be too hard on my veins. When I got home from that dr. appointment-- the one informing me of the port stuff-- I had a total sobbing meltdown.

Jason has been doing a good job keeping me busy. He'll be gone one week in July and the entire month of August (including our shared birthday weekend, which burns my butt). Sunday we went to a Louisville Bats game (they won). Yesterday we went to Waterfront Wednesday, a free outdoor concert featuring Celtic band the Elders and a performance by Sonny Landreth.

Students have started to swing by. One brought me dinner on Saturday and three kids came for an impromptu visit that lasted nearly three hours on Tuesday.

On Tuesday too I had lunch with the "breast cancer girls" who basically assured me that most of what I am feeling and experiencing is 100% normal. But more importantly, it was super important to spend time with women who have come out on the other side of this and are beautiful, happy, and vibrant.

Another setback has been that insurance won't cover anything related to my fertility issues. So if chemo sends me into early menopause, that's all she wrote when it comes to spawn of my own creation. I'm pretty much at peace with it, but that was certainly the source of another meltdown around a week ago.

I do find it a bit ironic (am I using that word in the right way or in the Alanis Morrisette way?) that I've always been totally squeamed-out by the idea of breast feeding. The idea of a wee one latching onto your boob and slurping away always made me go "ew." (Although the idea of Johnny Depp doing the same thing has never made me go "ew." Quite the opposite.) Well, that's now out of the question.

AND back when I was pregnant, I was totally happy-happy-joy-joy about the whole thing EXCEPT about the idea of actual childbirth, whether it be natural or C-section. Just ten weeks or so into my pregnancy and I was already having panic attacks about the act of birthing. Of course, back then that fear disappeared tragically. But now I may never even have the option of experiencing that fear again. (Don't worry, it will be replaced by new fears: the fear of adoption agencies taking a look at my lifestyle, my credit rating, my health... the fear that my foster kid would be better off with a mommy AND a daddy or a mommy AND another mommy or a daddy AND another daddy...)

Email #7 Back "Online" June 21

Thanks so much for all the notes in the past week or so. I'll get back to you all asap.

Since I got home from Bonnaroo, I've literally "powered down." It's been me on my back on the couch all day every day. The decision to do Bonnaroo this year ended up being awesome for the soul and terrible for the body.

The festival does an excellent job providing access for people who are mobility impaired. Our campsite was just a two minute walk from the main gate, I never had to wait in line, and if I'd wanted to, I could have sat in special access seats for just about every show. We borrowed an air mattress from a friend and that turned out to be even more comfortable than my own bed.

All that being said... by the time I got home my body felt as bad as it did the first few days after surgery and I've spent this whole week clawing my way back to where I was before I went to Bonnaroo.

Worth it? You know, it was worth it for four whole days of NOT being "Cancer Girl" alone. Add to that Willie Nelson, Pearl Jam, the Swell Season, Chris Rock, Ben Folds, Drive by Truckers, literally the best line-up of bluegrass artists the country has to offer, and like 100 more artists... it was worth it. I keep having to remind myself of that.

So, the pain drugs are still getting in the way of my ability to read (or "understand," I should say... I can read just fine). But two brilliant friends of mine sent me the DVDs of seasons one and two of Battlestar Galactica, and now I am a fracking addict! I find myself rationing... "No, Chip, SIX episodes is too much for one day." Holy cow. That's some good tv.

Unfortunately I've entered the "expansion" stage of my reconstruction, so weekly I go to the plastic surgeon and he (lovingly) injects 60ccs of saline into each of the footballs in my chest. Each expansion gives me a half a cup size and renewed soreness and pain as my muscles stretch. And as I check out my Franken-boobs and consider the prospect of more weeks of soreness, I can't help but wonder if I couldn't be perfectly happy going through the rest of my life as an A-cup. After all, my Ma has always been an A cup and she seems perfectly happy. Of course.... she's a crazy cat lady who probably hasn't had sex since the 1970's... but, she's happy.

(Back when I was a kid, in the sports section of the New London Day there were ads for strip clubs, and I remember there was one performer who used to swing into town regularly. Her name was "Busty Heart" and her measurements were advertised as, like, triple G or something. I wonder what Dr. Thornton would say if I went into his office and said, "You know, I think I'd like to keep going til I'm a triple G.")

(OMG! Busty Heart has a wikipedia page!!! http://en.wikipedia.org/wiki/Busty_Heart She is 46H-22-36. Well, bless her heart.)

Speaking of "bless her heart," I went to have a pre-chemo echocardiogram on Tuesday. That's an ultrasound of your heart. And apparently the lab tech didn't read my chart or something before she started on me because when she undid my hospital gown and saw the Franken-boobs, she GASPED, dropped my gown, and said, "Oh my god!" Totally understandable, and I was totally not offended, but it was a little bit unsettling. What was MORE unsettling was the fact that she ended up calling another lab tech to actually do the echocardiogram because she was afraid of hurting me... but she stuck around and chatted with me and when she found out I was unmarried, single, childless, and DIDN'T OWN A DOG, she started to WEEP!!!!

Bless her heart.

For my research-minded/science-geek pals, right now my planned chemo is a combo of taxotere and paraplatin for 6 months and a year of herceptin. (Last week, I thought it was called herpecin, and was totally confounded when I googled it and found it to be a treatment for herpes. I was like, "HERPES? Is there something they're not telling me??")

Anyway, that's all the news that's fit to print. Congrats to the Celtics. And congrats to Jamie Lynn Spears for not giving her kid too much of a stripper name.

And I send super special love to my Wisconsin support.

love to you all,
xo
MRC

Email #6 Brief Note June 11

Hi folks,

Hrumph. I've started this email a dozen different ways, but none of them sounded quite right. So, I'll just jump to the point.

The oncologist trip yielded the first "bad" news I've had for a while. While I'm hunky dory and healing well and feeling much better than I ever thought I would at this point, it turns out that the tumor was much more agressive than the doctors initially thought. And that means I'm looking at a pretty aggressive round of chemo to come.

I don't have much in the way of details; my brain kind of turned to oatmeal when the word "aggressive" came out of Dr. Williams' mouth. I have another appt with the oncologist in two weeks to tell him what I've decided. But the recommendation is 6 mos of chemo-- once every three weeks-- and a year of hormone therapy. I have at least four weeks before I can start the chemo, and I may delay it a bit longer so I can travel and soak up some summer fun before I have to dig in and deal with it.

Ma was devastated. I had to take her to the airport right after the appt, and I felt so, so bad putting her on a plane in that state. I think we were both pretty convinced that I might escape chemo totally-- or at least qualify for some weeny chemo. I'm pretty shaken up, too, but I just need some time to get used to the idea.

Anyway, now that I am up and running at around 75% of my usual self (I'm even driving now!), my priority is to have the best summer that I possibly can. So, with that in mind, I've decided to go to the Bonnaroo Music Festival this weekend. Jason and I got tickets back in March, and as soon as I was diagnosed I basically wrote off the possibility of going. But Jason has assured me that all I have to do is go and have fun, and he'll take care of everything else. (When else am I going to get to go camping and have someone else do all the crap work like setting up tents and whatnot? It's like having my own sherpa!)

So, that's the news. Not as good as all the other post-surgical news. But, you know, I just have to take it all in babysteps.

Hope all of you are well.

Lots of love.xoMRC

Email #5 Brief Note June 10

Big day today-- those of you who told me that getting my surgical drains removed would "change my life" were SO RIGHT. Today has been the very, very best day since my surgery. After the 5 seconds of peel-me-off-the-ceiling pain of having my drains removed, I've been soaring. I feel like I could dance the lambada (not really, but compared to the way I felt with my drains IN... seriously).

And tomorrow is the next and last Big News day for a while. Tomorrow I meet with the oncologist to find out what he thinks about chemo. I'll drop you a note to let you know how it goes. Ma's heading home tomorrow, and by next week my time is finally my own and I will start getting back to y'all on an individual basis. Between my sheer exhaustion and the constant company, I've found it impossible to establish anything resembling a routine.

But again, thank you all from the bottom of my heart for all the love and support. Continue with the crossed fingers.

Lots of love,MRC

Email #4: No Subject June 4

Hi folks,

Sorry for how long it's taken me to get online. Figures, for this rabid writer/reader that the ranges of motion most effected by the surgery has been those most required by acts like typing or reading. I'm still struggling to hold a book open, and this email will still have to be short.

Today was my first post-operative dr appointment, so I have a lot of good news to share. The report whose name I forget (I keep wanting to call it the "toxology report" and that's because I've been watching too much HOUSE/Law & Order/etc... ) came back to say that (a) they are 100% sure there was no cancer in my sentinal lymph node (b) there was no detectible cancer in the right breast and (c) the tumor was .3 cm smaller than it appeared to be at the time of surgery. And all together that means my cancer was Stage One. Dr. DeWeese said it was the "best possible news" given the circumstace.

Chemo, he says, is not off the table, though. I will have an appointment with an oncologist soon to talk about life expentancies and rate of recurrance. But it looks good. It's very exciting news. And it's truly unexpected, insofar as I'm concerned. I feared the worst (what with my rock star lifestyle and all, ha ha).

The recovery process has both been way better than I expected and way, way worse than I expected. The first few days were WAY better than I expected. I was pretty well convinced I'd bounce back in record time. It wasn't until I got home from the hospital that things got really bad pain-wise. While I make small improvements every day ("Yay, today I can flush the toilet on my own!" "Yay, today I can get from standing to sitting!!"), it just doesn't seem like enough to me. I woke up this morning and burst into tears. I'm just sick of being in pain and sick of being a patient. When I told my doctor all this he basically said I was being too impatient. I could expect a week to ten days more before I feel better.

People have been awesome. My mother is pretty much convinced that I'm the most beloved teacher at my school based on the volume of cards, flowers, and food I've received. Every day a different teacher shows up with a whole bag of dinner. Ma has bent over backwards. Jason is home now and has been excellent about listening to me and helping me out.

Truth be told, I've been so preoccupied with the pain and my limitations that I've not started processing the more emotional elements of the surgery to any great degree. Over the past few days I have gotten out of the house a couple of times and my greatest self consiousness has been with the stoop of my walk and with the two grenade-sized surgical drains hanging at my waist (basically I have two muumuu type dresses and that's all I can wear until I get rid of these drains. It doesn't help that it's pushing 90).

Anyway, thank you so much for your love and concern. I feel very lucky right now despite my sour mood. I'm sorry I've been so quiet. Hopefully things will start heading back to normal-ish in the next few days.

xoxoMelissa

Email #3: Here We Go May 28

Just a brief note to say thank you and love you to all of you. Thanks for the sweet emails, the cards, the flowers, the care packages, the general LOVE you have thrown my way these past few weeks. I am so lucky to have people like you in my life.

In a half an hour I can't eat or drink anything, so I am headed to bed. My mom arrived this morning (after an overnight weather-related delay-- I felt so awful, she was SO sad) and my uncle Tim arrived this afternoon. They are such great sources of support.

I'm sorry that I haven't gotten back to all of you lately. But I will be at Norton Suburban Hospital here in Louisville. And if you want to check up on my you're welcome to call my mom. Hopefully I will be in the hospital for two days or so, but it may be a few days before I am able to (or feel like) answering my own phone.Send me good vibes.

Love you all.

xoMRC

Monday, June 9, 2008

One Month, Two Days. Stage One.

And voila! Now you see them, now you don't.

It's been eleven days since the surgery and while I am still in a great deal of pain sometimes and my range of motion remains limited, I am pretty much back on my feet. I have a lot to catch you up on (although, thus far, no one has read this blog), so that will take some time.

The short story is this. The surgery was nothing like I thought it would be. I think that's thanks at least in part to the fact that I was so medicated by the time they prepped me for surgery that Hunter S. Thompson would have been proud.

If you remember, my greatest fear was the anesthesia. I must have mentioned that to someone at some point because I have zero recollection of being put under. None. Total blackout. I have little recollection of much after the nurse gave me what she called a "martini" (or two or three-- I seem to remember her adding more and more to my iv). And I have little to no recollection of waking up from the surgery. I just tonight found out that I pitched a fit with my patient navigator about not having my glasses. Long story which I'll try to fill in later. Seriously, the fam dropped the ball on that one.

The other big fear was the fact that I would wake up and get The News. Again, I don't remember much of this except not being able to articulate the question when I awoke. But in the end the answer was ringingly positive. The sentinal node tested clear. The cancer had not spread.

And the first couple of days-- the hospital/morphine days-- were way better than I thought they would be. Despite the fact that I barely slept in the hospital, everything else seemed really hunky dory. It might have been the dope. It might have been the euphoria of the good news when I had anticipated bad news. But I seriously felt as though recovery was going to be a piece of cake. My range of motion seemed good. I was reasonably comfortable (drugs).

It wasn't until I got home that things went to shit. I became stiff and every movement became an effort. I couldn't switch positions without help (you don't realize how dependant you are on your arms when it comes to leverage). I could only sleep, as though in a coffin, on my back, arms propped up, unmoving. I woke every four hours, max. I was peeing constantly and never pooping-- the constipation got so bad that on Sunday after the surgery, I OD-ed on laxitives and suffered the gut mangling consequences for two days. Every inch of my body hurt-- what didn't hurt from the surgery hurt from the awkward and unnatural positions in which I had to sit and lie.

By the sixth day after the surgery (thankfully, the day I had my first post-op dr's appointment), I was a weepy, angry, despondent mess. It seemed as though nothing was getting better, especially when I would wake up in the morning a mess of aches, painkillers worn off, still exhausted. After the highs in the hospital, the unanticipated depths of the lows when I went home made me feel as though something had to have gone terribly wrong.

And of course, the doctor said that everything looked as good as it should look. I was healing beautiful. The pain was to be expected. I might consider amping up the painkillers. Otherwise, I was just plain ol' being impatient.

More good news from the doctor. There was no cancer in the right breast. The tumor in the left breast was 1.7cm, and that's .3cm smaller than they thought it was from the ultrasound. The final analysis of the sentinal node says that it was, indeed, 100% clear (Megan-- the cancer survivor I met just before my surgery-- had her sentinal node test clear during her surgery and then unclear in the final analysis-- horrors).

And so all of this means that the girls and I were Stage One. We caught it early. All those piles of bad thoughts pre-surgery were just wrong. All that dread that I felt about my rock star lifestyle-- the heavy drinking, the more than 15 years of smoking, the lack of exercise, the taking of my body for granted-- all that certainty that this was PAYBACK-- well, it just goes to show you that I am one hell of a lucky S.O.B., now doesn't it?

I guess saying that I "dodged the bullet" is a bit like the broadcasters saying that New Orleans "dodged the bullet" after Katrina. Sure, NOLA DIDN'T get hit by the Big One. The Big One would have wiped out the whole city. But it was still devestation in grand scale. And I mean, Stage One is kind of a blessing in the larger scheme of things. But... it's still cancer. And I still lost the girls.

Wednesday, May 28, 2008

Day 20: Ups & Downs

Good day/ Bad day.

It's clockwork, folks. I can only hope that that doesn't mean tomorrow will be a bad day.

Got a phone call tonight after 9pm from Mom. Hysterical. Hyperventilaing. Her plane missed the connection in Cleveland and she's stuck there for the night.

Immediately my spidey-sense care-for-others thing kicks in, and I cry with her on the phone but I also realize that it's more about her than about me.

Still, that news coupled with the fact that my dryer decided to break down today in the middle of drying the sheets I bought for her bed...

I don't mean to be melodramatic, but still. Two pieces of frustrating and bad news in three hours?

Sunday, May 25, 2008

Day 18: the Perils of too much Alone Time

Overall, today has been a pretty good day. Yesterday was not so good. (I just gave the blog the once-over and realized that I'd added the tag "fears" to an early post. Yeesh, like EVERY post isn't about my fears).

Yesterday was my appointment with Glamour Shots. Probably, in the end, an enormous waste of money (what a racket that is! I had a coupon but still dropped some serious cash to order three 8X10's. Normally each photo you order is $60). The women there were very sympathetic and did seem to "hear" me when I stressed that the photos should "look like me, only better." I did engage in some serious eye-rolling when they whipped out the rose petals and sunglasses. But in the end, the hair and makeup person did a great job, and I found three nice pictures out of the several dozen that they took. The photo service will "glamourize" the photos with some serious airbrushing, but I couldn't get over the fact that even all made-up and gorgeous, I looked tired and old.

And if I hadn't been in a funk up til that point (and I was already calf-deep in the funk), that certainly sent me on a spiral downward.

I didn't really recover until this morning, and even then I don't know what put me back in a saner frame of mind. I guess being productive helps (I tend to make things a zillion times worse when I am blue by becoming a lazy lard-ass and then feeling even worse about myself for being such a slug). I graded around 30 papers this morning, probably more generously than normal. Then I headed out to the Kentucky Flea Market, which was, in the end, a fun goofy time. Swung by Borders and picked up a gift for a departing colleague and Lowes for some paint. Then passed by the house, picked up some cds that I'd loaded onto the iPod and brought them to Half-Priced Books, where I traded them for $20 and five bargain hardcover mysteries.

Then back to Quills. And here I am.

In retrospect, I didn't really get much of substance done today, but at least it kept me out of my own brain for most of the day.

There's a lesson to be learned here. Something about "it doesn't matter how much you think about shit... yadda yadda." Or something about "idle hands... yadda yadda." Mostly, "don't give into the dark side." Or something like that. Because let me tell you, I've been leasing to own in the dark side for the past eighteen days. And that ain't good.

It's also been very not good for me to be alone all this time. I swore up and down to Jason and to Ma that I would be A-OK for six days on my own. Not entirely true. Not entirely untrue either. I just should have been more proactive about finding someone to have fun with this weekend, rather than wallow 24/7 da solo.

Friday, May 23, 2008

Breast Cancer in SATC

I'm not sure I can figure out how to embed a video, but I was reminded today that Samantha from Sex in the City had breast cancer during the last season. There's a very sweet YouTube clip of the episode where she shaves her head. I'm hardly the Samantha type, but it's cute.

Day 16: Have I really been living with this for 16 days??

So, yesterday I went to see the new Indiana Jones picture with around 15 of my students. And how can you not hear that theme music and want to apply it to every aspect of your life? It's just so frigging victorious sounding. I need to download the themesong onto my iPod and have my mom play it over and over when I get out of surgery. Thank goodness that movie has some serious Girl Power in the person of the adorable and sassy Karen Allen. Did my heart good.

Otherwise, it's been a rough few days. It's just not getting any better and it's probably not going to get any better for a while. Ups and downs. Today my biopsy site began to hurt so bad that I called the doctor to make sure it was normal (it is). Way to have a delayed reaction, body! It's more psychologically painful than it is physically painful. It sucks to walk around with your breast hurting. And I swear the lump is getting bigger. I doubt it is, but it sure feels like it. I don't have to grope around anymore to find it; I can just hone in like a missile.

Today was the last day of school and the last day of work for me. Both a blessing and a curse. As much as I don't feel particularly connected to the school in the way that I was to my school in New Orleans, it's hard to be exacting myself from the community at a time like this. Knowing that after tonight (an end of the year party), I'm pretty much alone.

Much has been said about people wanting to visit and bring me food and whatnot. It's so nice that people even think that way, but I'm a terrible cynic. I gave everyone Ma's phone number and let them know that she'd be my PR agent for the first week or so.

I have been in touch via email with two young women who are breast cancer survivors and we're trying to hook up for lunch or coffee on Tuesday. I am totally looking forward to meeting them. It will be so nice to have that perspective.

I've also done something potentially very weird. I've made an appointment tomorrow at Glamour Shots to have a portrait done. Is that morbid and gross? I just haven't had a nice picture of me taken since my wedding, really (that was 9 years ago). I just want to have a record of the "now" me. A good one. Maybe not morbid and gross. Maybe just corny and naive.

One of the "nice" things about all of this is that it has put me back in closer touch with some long lost friends. And speaking of corny, but sometimes old friends really are the best. Got a great response from one of my college roommates saying, "This may be weird to say, but you're going to be GORGEOUS bald with your big Sinead [O'Conner] eyes!" That email may have been the highlight of my day.